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J.Jpn. Surg. Soc.. 120(6): 639-645, 2019
Feature topic
THE JAPANESE BREAST CANCER SOCIETY BREAST CANCER REGISTRY IN THE NATIONAL CLINICAL DATABASE: CURRENT STATUS AND FUTURE PERSPECTIVES TO IMPROVE OUTCOMES FOR BREAST CANCER PATIENTS
The Japanese Breast Cancer Society (JBCS) has been accumulating breast cancer patient data since 1975, which totaled 188,265 cases over 29 years. However, recent increases in breast cancer incidence in Japan have made it unfeasible to maintain the same data pool system for further analysis of disease trends. Therefore, the JBCS launched a new patient registration system in 2004, which recorded 252,922 cases during 2004-2011. Furthermore, since 2012, the JBCS Breast Cancer Registry has been combined with the National Clinical Database (NCD) 5-year and 10-year prognostic data dating from 2004. In 2016, this registry covered 84% of the official annual breast cancer incidence in Japan. In this article, the current status of the NCD Breast Cancer Registry is summarized in conjunction with future perspectives including quality indicator analysis, guideline evaluation using prognostic outcomes, and development of a real-time personalized survival analysis tool using the NCD Breast Cancer Database.
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